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Prescription restriction – are the savings real?

02/04/2017 //  by Michelle Berridale Johnson//  2 Comments

Outrage has had a field day over the last ten days – whether it is coeliacs outraged that Simon Stevens wants to deprive them of their prescription foods or non-coeliacs who are outraged that coeliacs should get ‘free’ food – which of course is not free anyhow, unless you get free prescriptions. But maybe a more productive way forward is to jettison the outrage in favour of some hard figures.

The NHS’ desire to save money and avoid waste is understandable – indeed laudable. But could some of the proposed ‘savings’ end up by costing a great deal more than they save?

While it is unlikely that failing to provide a pain killer will have any long term consequences for patients other than discomfort, the same cannot be said of failing to provide gluten-free foods for coeliacs, or, as was recently threatened by Croydon CCG, failing to provide cow’s milk free infant formula for allergic babies.

Not following a gluten free diet, if you are coeliac, can have serious long term health consequences requiring significant and expensive medical interventions. And while there are now many more gluten free foods available in larger supermarkets and main centres, they can be up to four times more expensive and may not be available in local stores or in more outlying districts. For elderly, or housebound  coeliacs or for those on very restricted incomes, these products may be too expensive or simply not available unless they can get them on prescription.

As result they may fail to follow their gluten-free diet, thereby seriously impairing their own health to the point that they require far more expensive medical intervention.

The same argument applied to cow’s milk free formula for severely allergic babies. The cost of the formula is, indeed, very high – approximately 8 times more expensive than normal formula, more than even a middle income family can probably afford.

But if these babies do not get this formula they risk a severe allergic reaction, or a staph infection in severe eczema which will result in an emergency admittance. These often mean a 4-5 day stay, requiring intravenous antibiotics, drips, and more to stabilise the baby/ child, along with further drugs to continue to stabilise once discharged home – with all the damage to the child’s longterm health that this may involve.

A quick calculation of the comparative costs  of providing formula for 20 babies for 1 month (£4,320) as against admitting these same babies for 4-5 days of treatment (£100,000) speaks for itself. (See the FoodsMatter site here for more on this.)

Wisely, Croydon and the other CCGs who had been contemplating this move have now thought again.

While the cost comparison for coeliacs may not be so dramatic, it is still significant, and, taken over even a five year period, could be very much greater than the £21.9  million that scrapping prescriptions might save.

For more on the issue see Sue Cane’s article here, and Alex Gazzola’s blog here.

Category: Coeliac/celiac disease, Conventional Medicine, Food/Health Policy, Gluten-free, NutritionTag: Coeliacs not longer to get gf food on prescription, consequences of not following a gluten-free diet, Cost of cow's milk free formula, cost of not providing allergen free milk for allergic babies, Croydon CCG tries to take cow's milk free formula off prescription, gluten free food not widely available outside main centres, gluten free food too expensive for those on benefits, gluten-free diet, gluten-free prescription food, should coeliacs get food on prescription?, Simon Stevens

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Reader Interactions

Comments

  1. William Overington

    03/04/2017 at 10:16

    > As result they may fail to follow their gluten-free diet.

    May I politely express concern about the use of the word fail here please?

    The “they” are the people referred to in the following quoted text.

    > For elderly, or housebound coeliacs or for those on very restricted incomes, these products may be too expensive or simply not available unless they can get them on prescription.

    I opine that

    they may simply not be able

    would be fairer than using

    they may fail

    in your sentence.

    The use of the word fail provides a connotation of the situation being due to their own fault, which I am sure is not what you intended.

    Also, the outrage to which you refer gives the impression that everybody who is non-coeliac is “outraged that coeliacs should get ‘free’ food”.

    I do not know whether I am coeliac or non-coeliac as I went gluten-free years ago at my own choosing.

    I never begrudge anybody having a prescription for anything.

    The article to which you link

    http://www.foodsmatter.com/coeliac-disease/management/prescription-gluten-free-food-04-17.html

    includes

    > the unemployed

    I opine that

    people who are without employment

    would be fairer than using

    the unemployed.

    In this area, Worcestershire, there is a PDF (portable document format) document available from a link on the following web page.

    http://www.southworcsccg.nhs.uk/get-involved/

    Not only are they trying to restrict gluten-free food prescriptions but also some prescriptions for infants!

    There are several sections headed as follows.

    quote

    What do other Clinical Commissioning Groups do?

    end quote

    There is then information about what a few Clinical Commissioning Groups do, yet no details at all of what most Clinical Commissioning Groups do.

    William Overington

    Monday 3 April 2017

  2. Jeemboh

    03/04/2017 at 10:42

    I suspect that one of there issues is a lack of clarity and understanding – at all levels – about what the comparative costs really are. This needs to be properly researched with the results made widely available. Michelle’s blog is a good start.

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