Those of you who also read the FoodsMatter newsletter may have seen Rachel’s article about her multi allergic family – herself, Type1 Diabetic, her daughter, wheat and dairy allergic and her 10-year old son, who is now living on five foods but who spent last year being tube fed via a nasogastric tube.
This is a major ask for anyone – and a super big ask for an active 9-year old – but the family embraced it and triumphed. Anyone interested in both the practical and psychological problems of living with an ever present tube up your nose and food pack on you back should really read Rachel’s blog, 7 Years to Diagnosis (you will need to spool down to the Tube feeding posts), where she has seven posts covering Tube Feeding Awarness Week. Here she discusses not just the effects on her own family (including her daughter who, despite her own allergies, finds herself in the position of a ‘young carer’ for her brother) but the wider needs of the ‘tube fed’ community.
And hang in here… In the next newsletter, G & M – code names, Galaxy Gazer and Marvin (the Paranoid Android) – will be talking about their reaction to their mum’s elevation to the exalted level of a FreeFrom Food Awards judge!!